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Henry David Thoreau observed, “Most men lead lives of quiet desperation and go to the grave with the song still in them.”
p>Mr. Henry, you have never bored us. You have sung your song, and your loyal readers, hope for your healthy return so you can sing your song about matters of life and death for a long while. Repeating a refrain with subtle changes and added nuance is the goal of jazz masters, and also many a good writer. br> — Ira M. Kessel br> Rochester, New York /p>Far from boring your readers, you are doing a great service writing about your experience with the IVIG protocol at Cedars. Lives should be saved.
My daughter had a PRA of 87% and was reacting to my tissue and we were told at our transplant center in San Francisco two years ago that she would reject my kidney and those of her father and two uncles and would have to remain on dialysis, probably until she died since her PRA was so high.
Finally, a nurse at her dialysis clinic, after hearing that we were given no hope, told Soraya that he knew there were protocols that corrected the antibody problem and suggested she go on line and research it herself. She found Cedars-Sinai and called there and made an appointment for us to be evaluated. Within two weeks we were in LA and after taking blood from both of us and placing it in a test tube with IVIG, they told us they believed the protocol would work for her.
It is still inexplicable that her doctors at two major transplant centers in San Francisco insisted that they had never heard about the High dose IVIG protocol developed at Cedars. It went through NIH trials and has been approved and paid for by Medicare since 2004. Dr. Jordan and his co-inventor, Dolly Tyan who is now at Stanford where they offer exactly the same protocol, have published their results in all the major transplant journals and presented at the American Transplant Congress for years.
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