By Lawrence Henry on 7.27.07 @ 12:08AM
Good Samaratin organ donorship is in the air these days -- not a moment too late.
In an op-ed published July 16 in the Chicago
Tribune, "Using the Internet to Donate Organs," Tom Simon
argued the case for donating a kidney to a stranger via the website
Matchingdonors.com.
When I made the choice to donate a kidney to a
stranger, I began the process as a non-directed donor -- meaning I
was prepared to let Northwestern Memorial Hospital choose my
recipient for me. I immediately began to have misgivings about this
approach.
What if my kidney wound up inside a registered sex offender or a
violent ex-convict....I was less interested in saving the sickest
person I could find and more interested in saving the life of
someone who could make a difference in the world once his or her
health was restored to normal.
...I found the posting of a Chicago woman named Brenda for whom
I felt a great deal of empathy. She was young, aspired to have kids
and worked as a domestic violence court victim advocate for the
Cook County state's attorney's office.
TRANSLATION: I WANTED TO DONATE A KIDNEY TO A LIBERAL. Does this
kind of sanctimony make you as nauseated as it makes me? I have
been on the other side of this Internet tease. I did a one-week
trial with Matchingdonors.com. I wrote to four people of my blood
type who stated on the site that they were willing to donate to
anyone. The site's internal messaging system confirmed that my
messages had been read.
I heard from no one.
I don't know what Matchingdonors.com charges for the privilege
of "playing God," as Mr. Simon so accurately puts it. But it costs
about $700 for a "lifetime" membership for would-be recipients.
I've been getting e-mail blandishments from the site ever since my
trial membership. They have slick phone salespeople to try to
persuade you to buy those "lifetime" memberships.
Here's the rub: If Mr. Simon and his like are "less interested
in saving the sickest person I could find," that sickest person is
left to die. Twenty percent of dialysis patients die every year.
I've had one close call myself this year.
IN 1972, THE GOVERNMENT STRUCK A DEAL with private insurers. After
three years of treatment, Medicare would take over insuring End
Stage Renal Disease (ESRD) patients. That also qualifies most ESRD
patients for Supplemental Security Income (SSI). Being in a
weakened state, most of us take it.
As usual, the government had no idea what it was getting into.
In its first full year of operation, the ESRD Medicare program was
spending $229 million. By its tenth year, the program costs
exceeded $2.5 billion. By 1997, that cost had ballooned to $15.64
billion. Most of this money goes toward maintaining dialysis
patients. Transplant saves Medicare about 60 percent
post-transplant, assuming a ten-year period, because, 36 months
after getting a successful transplant, transplant recipients stop
receiving Medicare payments. Transplant patients mostly return to
normal lives (as I did for 20 years). Nearly two-thirds of dialysis
patients, especially those with diabetes, find themselves unable to
do any more than support their daily personal needs.
THIS IS A PUBLIC POLICY ISSUE, LIKE IT OR NOT. It makes sense for
government to encourage transplant, as opposed to long-term
dialysis, simply on the basis of cost outlay. But it also makes
social sense, because transplant recipients lead transparently
normal lives, working, paying taxes, raising families, contributing
to the general welfare.
As always, faced with a system that doesn't work well, patients
with the gumption have taken matters into their own hands -- and
wallets. An old pal of mine, also going for his third kidney
transplant, got in touch with me to urge me to solicit a kidney
from my friends, church members, and associates. I did that, and
ultimately found several willing donors. One survived the testing
process, and was willing to donate to the swap program at my
hospital. The database of potential paired transplant donations is
being run now, and I should know within a couple of weeks whether
or not I have a kidney.
The head doc of the transplant program here advised me to wait
until the fall to see what the database turns up -- it changes
regularly. If I don't have a kidney by that time, I will take a
short trip to Tampa and register with a transplant center there.
The waiting time for a cadaver transplant -- from accident victims,
mostly -- is shorter in Florida than in the Northeast. I do not
have to move to Tampa. I can simply be ready to hop a plane at a
moment's notice. It's expensive, but lots cheaper than living the
way I'm living now
PREFERABLY, TWO PROGRAMS OUGHT TO BE IMPLEMENTED. First, there
ought to be a national program of reimbursal for "Good Samaritan"
donors -- people willing to donate either to an individual or to a
medical center's swap program. Put simply, you ought to be able to
sell a kidney, or have yours heirs do so. Second, instead of asking
people to designate themselves as organ donors through the driver's
license programs of various states, it ought to flip over: People
would be presumed donors unless they explicitly opt out.
This is called "presumed consent," and it exists in Portugal and
Italy, where dialysis is minimal and transplant common.
Unfortunately, an irreducible population of idiots in this country
remains convinced that doctors wait, Frankenstein-like, scalpels at
the ready, to turn an accident victim into a dugout canoe before
he's really dead.
Ideally, both policies would work together. Presumed consent
would tend to keep the otherwise-inflationary price for selling an
organ down.
SO WHAT'S THE OBJECTION, IN THE MEANTIME, to Internet dating for
organ donors? Several statistical realities.
Organ donations are matched up by blood type. As my doc told me,
"The ABs cycle through very fast, because blood type is not an
issue." An AB can receive a donation from anyone. Meantime, Bs, Os,
and As wait, and are likely to be among the sickest cited by Tom
Simon in his smarmy op-ed.
Internet matchups do little or nothing to even out regional
inequities in waiting time. They do nothing much, at least
intentionally, to alleviate the generalized, ill-distributed,
suffering of the waiting population of transplant candidates. And
they will tend to give kidneys, like Mr. Simon's, to those
applicants who, naturally or by design, ring all the right
Oprah-like bells to move Mr. Simon's and his cohort's questionable
consciences.
Make no mistake, Good Samaritan donorship is in the wind these
days. Transplant medical centers are filled with literature on the
subject from the National Kidney Foundation, the very establishment
of transplant.
It all helps. But it's still not enough.
topics:
Taxes, Medicare