By Lawrence Henry on 7.22.02 @ 12:05AM
Kidneys are in short supply only because of our country's policy about organ donation.
We got the bad news by telephone at about 5:30 last Monday,
barely 40 hours before I was supposed to check into the hospital to
have a kidney transplant, donated by my sister, Michele. Michele
picked up the call downstairs and shortly afterward I picked up the
phone on the second floor.
I heard Michele say, "If you're calling this late, it isn't good
news, is it?"
And Dr. Mulgaonkar said, "No, it's not good news."
A final round of blood-matching tests had shown my blood
creating positive antibodies to Michele's tissues. A transplant
would have rejected, and rejected fast. Some rejection episodes can
be turned around by medical intervention -- indeed, a rejection
crisis in the first 90 days after transplant is reasonably routine
-- but this transplant promised repeated such episodes.
I was folding and putting away clean laundry at the time. I hung
up the phone. Before enlightenment, you chop wood and fetch water.
After enlightenment, you chop wood and fetch water. I headed
upstairs with a load of clean underwear and socks. As I turned away
from the chest of drawers, my sister flung herself into my arms and
clung to me hard, sobbing and sobbing.
Our first thought, as Michele finally dried her eyes, was that
we had to call our mother, who was going to get on a plane in
California that night. And then we had to tell my wife, Sally, to
spare her having the news broken to her in front of two little
boys, Bud, 7, and Joe, 2.
"I'm coming anyway," Mom said, when we called her. And of course
that was the right thing to do. We needed her for the help and the
planned celebration; we could not now leave her out of the
disappointment.
Sally, who worries ("Somebody has to do it"), initially found
all her fears confirmed ("It ain't over till the last urethra is
connected"), but then pulled together, as we all did, and we
soldiered on. When the transplant was still on, I had told Michele
and Sally, "We're so lucky, to be able to do this wonderful thing
together. We're going to look back on this and remember it as one
of the best times of our lives."
That's still true.
Here are the technicalities. Kidney transplant has been
overshadowed in the U.S. by the more dramatic and higher-profile
heart, liver, and lung transplants. Oscar Robertson donated a
kidney to his daughter. Mickey Mantle got a liver transplant while
he was dying of cancer. Who do we remember?
Transplanting kidneys, while not quite as pro forma as dropping
a new transmission into your car, is highly reliable nowadays. Back
in 1981, when I first did it, the odds were about 50/50 that a
cadaver transplant (harvesting a kidney from an accident victim)
would last for a year, with slightly better odds for a kidney from
a live related donor. Those odds are up in the 80 and 90 percent
range today, with greatly improved immunosuppressant drugs and more
genetic knowledge available for matching up tissues with
tissues.
In addition, non-related live donor transplants -- from friends,
spouses, co-workers, even total strangers -- are now common and
quite successful. My blood type is O positive. If your blood type
is O positive and you're under 55, think about it.
Or think about it for anybody. At St. Barnabas Hospital, where
my transplant was scheduled, another operation was slated involving
a kidney donated by a state Supreme Court justice -- to a total
stranger.
Kidneys are in short supply, with thousands of people waiting
for transplants. They are in short supply only because of this
country's policy about organ donation. We require a positive prior
assent -- that sticker you're asked to put on your driver's license
that tells medical people, "Yes, you can take my organs for
transplant if I die in an accident." In other countries, positive
assent is presumed, and you must exercise your right to say no. In
Belgium, where that policy prevails, live transplants are virtually
unknown, because there are plenty of cadaver kidneys to go
around.
Those of us with failing kidneys, or who live on dialysis, don't
present quite the appeal of a child wracked by leukemia, who needs
a bone marrow transplant in a last desperate measure to live. "I
can't believe it," some people have said to me. "You look just
fine." But the stakes are exactly the same -- life itself,
ultimately.
And, as for the difference between life on dialysis and life
with a transplant, imagine having to choose between a sophisticated
motorized wheelchair or being able to walk and run.
Now we wait. And there are positive prospects. Ordinarily, I
could expect to put in a year to 18 months waiting for a transplant
in the crowded Northeast. Other regions -- Wisconsin and Florida
have been mentioned -- move faster. And some transplant facilities
will allow a mismatched donor, like my sister or my wife, to donate
a kidney to their program -- it'll fit somebody, after all,
probably right away. Then I would be bumped to the head of the
waiting list for my blood group for the next cadaveric transplant.
That might reduce the wait to a matter of weeks.
It's been tougher on my wife, my sister, and my mother than it
has on me. Like a parent watching his kid play tennis, the
onlookers can't really do anything, though they desperately want to
-- except keep their fears under control. I had my cry, sobbing and
bellering "Why me?" against the injustice of the universe, a long,
long time ago, when my original kidneys first failed.
All I was ever worried about this time was whether the ICU's
televisions got ESPN, so I could watch the British Open. What I do
now is avoid, one moment at a time, picking up the first regretful
or sorrowful or self-pitying thought. Like an alcoholic avoiding a
drink, I know those thoughts can kill. So one "If only" at a time,
I simply do not allow myself to start to think that way.
topics:
Television, Supreme Court